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Data will be collected using Limesurvey (Version 2.06lts Build 160,524) and exported to a secure SPSS database ( IBM SPSS Statistics for Windows, Version 25.0. Armonk, NY: IBM Corp) for management and analysis. All principal investigators will have access to the final study dataset, of which one delegate has control over study codes with links from personal data of the patients and their relatives. To avoid potential bias, the researchers will be blinded from any results that can relate data back to the individual respondents. Personal data will be anonymised.

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Public access to the study protocol, study details, participant-level dataset, and statistical code can be obtained from the correspondence author. The results will be disseminated to healthcare professionals, health services authorities and the public via presentations at national and international meetings and published in peer-reviewed journals. A lay summary of the results will be written and shared with the Dutch foundation FCIC and made available to participants on request. 041b061a72


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